Friday, September 13, 2019
It is 3:00am on Friday morning. I am remembering. The coffee maker beeps and I go to the kitchen and make my first coffee in my cup from Elizabeth’s Restaurant – one of our favorite places for breakfast. My first memories of R’s and my time together are of our times on the phone on early mornings as we have first coffee in separate cities – I am in Jackson, MS and he is in Delhi, LA, back in 1998. Nothing tastes quite like that first sip of Community Coffee as we look toward the rising sun.
Wednesday, August 14, 2019…(continued from last week)
I ask R. again if he is certain he is ready for Hospice. He nods. I call the doc and everything is set up before the sun goes down. R signs all the papers with the nurse and he is at ease over the decision. At last, I think.
Over the next 2 days R. is getting weaker and weaker, more pain. Several visits from loving friends from Rayne Methodist. He loves them as well. Afterwards, as he sleeps, I play Simon & Garfunkel. Silence like a cancer grows.
He can no longer swallow pills so I call hospice and they send out liquid morphine and Ativan. They say give him .5 ml morphine every hour. That’s not enough. He cries out in pain. Esophagus is inflamed and painful. Difficult to swallow, so I drip .75ml morphine into the side of his mouth as I gently hold his head. No sleep for either of us. He rests for about 10-15 minutes, then is in pain again.
I continue to get him up and on the walker from bed to sofa. Calls me every minute it seems. We say prayer together and he reads to me from the Upper Room meditation, then puts the booklet on the bedside table. “My greatest fear is that I will die mean & nasty – I want you to call me on it if i get that way.” I assured him I would. He has never been mean and nasty and I tell him I do not think he will start now.
Sunday August 18, 2019
I lie with him on the guest bed. He wakes – I mindlessly move something from one place to another on the bedside table. He is lucid. “Can you explain to me the logic behind what you just did.” “There is none,” I smile and answer. “I am merely being here with you.”
I call hospice on Sunday morning and request a hospital bed, as he can no longer get up without help and I’m concerned he could fall. I go to a local store to purchase single bed sheets. These are the sheets that my husband will die on, I think, and I weep as I make the purchase. Afternoon, aide comes and gives R. a bath in bed, then sits him up in the wheelchair. Hospital bed is delivered. While they set it up with much clanging, I wheel R. back to our bedroom. My son John, friend Carol Spencer and Pastor Jay Hogewood follow. Carol gives us communion, Jay anoints R. with oil. R. is looking for the W.H. Auden poem The Wave, his favorite line of which is I inhabited the wake of a long wave. He speaks with Jay about what he wants in his memorial service. Come thou fount of every blessing.
I tiptoe in to give him his meds tonight, “What’s going on”. I’m here to give you Morphine and Ativan. He pulls the sheet over his head like a little kid and says No. I wait, then drip the meds under his tongue.
Monday August 19, 2019
Nurse is here and I assist her in changing the dressing on his pressure sore. I hold his frail body on his side so that he sits up a bit. He tries to focus on what we are doing as I hold him and the nurse replaces the bandage. His eyes open wide. “Is this it? Is this it?” No, this is not it R. This is not the moment of leaving this life to the next. “Are we in New Orleans?” Yes, we are in New Orleans. “Good,”, he says as I lay him gently back on the pillow. My husband is ever the curious.
Daughter Jennifer is here and she plays Bob Dylan, R’s favorite. We watch as his hands tap to the beat of Dylan’s tunes in his sleep.
Friends Kelcy and Jim Patterson stop by in late afternoon. Kelcy says she is staying the night and I am grateful. Jim is a physician and takes R’s pulse and listens to his heart. Later we tell all good night. We do not sleep. R is calling out for me all night; intense pain. More morphine and Ativan, not working; he calls me to help him, concerned that he might soil the bed. I struggle to get him up and on the bedside commode, then back in bed, and he is using all his strength to help. I ask Kelcy to help get him back in bed. “Put your hands around my neck” I say and he does.
I lift him up into bed and Kelcy lifts his feet , then with his arms still around me I pull him up so that his head is at the top of the bed. He hugs me tightly, and I have pleasure in that. “I think this bed is just for one person,” he says, “I don’t think you can get in here with me.” I agreed with him and pried his arms from around my shoulders and he immediately rested on the pillow. More morphine. .75ml. He sleeps for a few moments. Then he calls out all night in pain. I give him as much morphine and ativan as I can but he does not rest.
Tuesday August 20, 2019
Morning and R. struggles to breathe. Daughter Jennifer is here. About 10 am R. tries to sit up in bed, gargling acid reflux, “Not working, not working”. I call Dr. Jim back, as he and Kelcy had left a few moments prior, and he returns. He suctions out about a cup of brown acid from Robert’s throat. R. is still restless, but less pain. I give Jim the bottle of morphine and I cradle R’s head. We drip the liquid into his cheek. I watch R take two breaths, then no more. The point of departure is here. “He’s stopped breathing,” I whisper. “Faint heartbeat. No pulse. Heart stopped. He is gone,” Jim says. I feel great relief for my husband. The pain has ended. I watch his face and for the first time in over two years there is no sign of pain, no sign of struggle, no sign of worry.
I kiss him goodbye.
Hello darkness my old friend, I’ve come to talk with you again.